Massachusetts General Hospital

Written by Anna Mann

55 Fruit Street
Boston, Massachusetts 02114

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APEX Members

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Rebecca Karp, MD
Rebecca Karp, MD

Principal Investigator
Co-Founder and Co-Director, MGH Porphyria Center
Assistant Professor, Harvard Medical School
Division of Hematology, Massachusetts General Hospital

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Amy Dickey, MD, MSC
Amy Dickey, MD, MSC

Principal Investigator
Co-Founder and Co-Director, MGH Porphyria Center
Assistant Professor of Medicine, Harvard Medical School
Assistant Physician, Massachusetts General Hospital

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Current Research at Massachusetts General Hospital

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7201: Longitudinal Study of the Porphyrias

The purpose of this long-term follow-up study is to collect a large group of patients with the different types of porphyria and to provide a better understanding of the natural history of these disorders. The hope is that this information will help in developing new forms of treatment.

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Past Research at Massachusetts General Hospital

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7211: Effect of Oral Cimetidine in the Protoporphyrias

The study design is a prospective, blinded, randomized, 2x2 cross-over design comparing cimetidine to placebo in patients with protoporphyria.

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Anna Mann
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