Principal Investigator Co-Founder and Co-Director, MGH Porphyria Center Assistant Professor, Harvard Medical School Division of Hematology, Massachusetts General Hospital
Principal Investigator Co-Founder and Co-Director, MGH Porphyria Center Assistant Professor of Medicine, Harvard Medical School Assistant Physician, Massachusetts General Hospital
Current Research at Massachusetts General Hospital
The purpose of this long-term follow-up study is to collect a large group of patients with the different types of porphyria and to provide a better understanding of the natural history of these disorders. The hope is that this information will help in developing new forms of treatment.