University of California San Francisco

Written By Anna Mann

505 Parnassus Avenue
San Francisco, California 94143

APEX Members

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Bruce Wang, MD
Bruce Wang, MD

Director-At-Large
Associate Professor
Division of Gastroenterology
Director, UCSF Porphyria Center
University of California at San Francisco
San Francisco, CA

Current Research at University of California San Francisco

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7201: Longitudinal Study of the Porphyrias

The purpose of this long-term follow-up study is to collect a large group of patients with the different types of porphyria and to provide a better understanding of the natural history of these disorders. The hope is that this information will help in developing new forms of treatment.

7208: Evidence-based Assessment of Medication Sensitivity in Acute Hepatic Porphyria

The purpose of this study is to collect information on acute porphyria attacks that may have been caused by a medication. Individuals who have tested positive for an acute porphyria, or have been told by a doctor that they may have the disease may join this study. We are particularly interested in the following: (1) Attacks that appeared to be due to a specific medication; (2) Use of a medication that is considered risky in porphyria but caused no problems; and (3) Use of medications for which the safety profile in porphyria is unknown.

Anna Mann
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