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American Porphyrias Expert Collaborative
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American Porphyrias Expert Collaborative
American Porphyrias Expert Collaborative
Programs
Porphyrias Consortium
Western Hemisphere Network
Research Grants
International Porphyrias Symposium
For Health Professionals
Testing and Diagnosis
Disorders in Depth
Drug Safety for AHP
Consult with a Porphyria Expert
For Patients
Research
Porphyria Centers of Expertise
Research Studies
Publications
About Us
About Us
Board of Directors
Working Groups
Become a Member
Folder: Programs
Back
Porphyrias Consortium
Western Hemisphere Network
Research Grants
International Porphyrias Symposium
Folder: For Health Professionals
Back
Testing and Diagnosis
Disorders in Depth
Drug Safety for AHP
Consult with a Porphyria Expert
For Patients
Folder: Research
Back
Porphyria Centers of Expertise
Research Studies
Publications
Folder: About Us
Back
About Us
Board of Directors
Working Groups
Become a Member
A Prospective, Blinded Study of Symptom Prevalence and Specificity of Porphyrin Precursors in Carriers of Acute Hepatic Porphyria
Anna Mann 7/25/25 Anna Mann 7/25/25

A Prospective, Blinded Study of Symptom Prevalence and Specificity of Porphyrin Precursors in Carriers of Acute Hepatic Porphyria

Liver International, July 2025

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Liver involvement in a large cohort of patients with erythropoietic protoporphyria or X-linked protoporphyria
Anna Mann 7/25/25 Anna Mann 7/25/25

Liver involvement in a large cohort of patients with erythropoietic protoporphyria or X-linked protoporphyria

Hepatology Communications, March 2025

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Case-based discussion of the acute hepatic porphyrias: Updates on pathogenesis, diagnosis and management
Anna Mann 7/25/25 Anna Mann 7/25/25

Case-based discussion of the acute hepatic porphyrias: Updates on pathogenesis, diagnosis and management

Liver International, March 2025

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Update on heme biosynthesis, tissue-specific regulation, heme transport, relation to iron metabolism and cellular energy
Anna Mann 7/25/25 Anna Mann 7/25/25

Update on heme biosynthesis, tissue-specific regulation, heme transport, relation to iron metabolism and cellular energy

Liver International, June 2024

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Evidence-based consensus guidelines for the diagnosis and management of protoporphyria-related liver dysfunction in ePP & XLP
Anna Mann 7/25/25 Anna Mann 7/25/25

Evidence-based consensus guidelines for the diagnosis and management of protoporphyria-related liver dysfunction in ePP & XLP

Hepatology, July 2023

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Evidence-based consensus guidelines for the diagnosis and management of erythropoietic protoporphyria and X-linked protoporphyria
Anna Mann 7/25/25 Anna Mann 7/25/25

Evidence-based consensus guidelines for the diagnosis and management of erythropoietic protoporphyria and X-linked protoporphyria

Journal of the American Academy of Dermatology, August 2022

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